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Myth #1: Hospice care is only for those who have given up on life

Hospice care is as much about how you want to live as it is about how you want to die.

"At the end of life, the concept of hope often changes for people, and their hope shifts to other priorities like quality of life, comfort and peace," says Amy Tucci, the president and CEO of the Hospice Foundation of America. "They want to be around their loved ones and familiar possessions. And they want to have the best quality of life that they can."

Instead of focusing on curing an illness or prolonging death, the goal of care becomes to relieve symptoms and give patients the the best quality of life they can have in their remaining days.
 

Myth #2: Hospice care is only for terminal cancer patients

When it was first created, hospice care was primarily for cancer patients at the ends of their lives. But today, while many hospice patients do have cancer, the majority have other life-limiting diseases such as Alzheimer's disease, cardiovascular disease and dementia.

If the patient lives longer than six months but doctors continue to certify that they're terminally ill, they'll receive hospice care for as long as needed, she adds.
 

Myth #3: Hospice is a place

Hospice is rarely an actual location that people go to. The care almost always is provided where a person lives.

"Generally hospice comes to you where your home is," says Angela Novas, a licensed nurse practitioner and chief medical officer for the Hospice Foundation of America. "So if a home is in a nursing home, that's where hospice goes. If home is in the family apartment, that's where hospice is. We go to the patients."

Hospice patients are assigned a team of providers — a physician, registered nurse, home health aid, social worker and chaplain at a minimum — who regularly check in with them. They work together to provide medical, emotional, spiritual and grief support to not only the patient but also their family, Novas says.
 

Myth #4: Once you are in hospice care, you have to stay

"One thing that scares people about hospice is that they feel like if they choose hospice, they're stuck," says Tucci. But people can leave hospice whenever they want, she says, and there's always the option to reapply. "So if you decided, for example, that you wanted to try a drug trial or you wanted to consider some sort of alternative treatment for your illness that hadn't been tried, you could leave hospice and do that."

In other words, hospice doesn't mean you or your family are giving up control over your care, or the ability to choose who provides it.

Myth #5: It's always the doctor's responsibility to bring up hospice

"The thing that we hear more than anything from people and their family members is that they wish they had understood hospice better and had accessed it earlier," says Tucci.

Many patients don't know that they can initiate hospice care on their own, or how to start that process. Either they are afraid to discuss hospice or they are waiting for a physician to suggest it, which doesn't always happen, says Tucci.

If a patient is receiving treatments they don't want anymore, they or a caregiver can initiate hospice by starting the conversation with their doctor or by contacting a local hospice provider directly to ask for an evaluation and determine qualification.

Every illness has different indicators for when it might be time to begin hospice, says Tucci.
 

Myth #6: Hospice care is only for the elderly

Although most people cared for by hospices providers in the U.S. are over the age of 65, the care is available for anyone with a life-limiting condition who meets eligibility.

"There are lots of sort of life-limiting diseases now, such as ALS, that strike typically at an early age," says Novas.

Mission Statement

The specific purpose of the Lorraine Bethea Hospice Foundation is to support hospice patients and their families through intentional acts of kindness for further comfort toward their end of life journey.

What is a Memory Gift?

A Memory Gift is an intentional act of kindness that will lift a human spirit. It varies from person to person and family to family. It may be a dinner at a restaurant, a special experience, or a visit from a special person. Each gift is determined individually. Their goal is to make it happen.